Tag Archives: Camp

Connections All Around Us

We are like islands in the sea, separate on the surface but connected in the deep.
― William James

Earlier this week I was sitting in the aisle seat on a flight back from California and got to talking with a mom in the seat across to me, whose teenaged son was headed to diabetes camp. We had noticed her fiddling with a BG meter, and then a familiar blue insulin pump.

I tapped her on the shoulder and asked her about her child, and the pump, and shared some of my own story. We talked about some of the difficulties of being Type 1 parents. We swapped contact information, and went on our separate ways when the plane landed.

This interaction reminded me that we have connections (and potential resources and support) all around us, if we pay attention and have the courage to say hello!

Diabetes Family Camp: Laugh. Cry. Bolus.

I wrote last month about our opportunity to attend ConnecT1D’s Diabetes Family Camp in Seattle, and how excited we all were for the weekend. Evie has gone away to diabetes summer camp for the past couple of years on her own, but this was the first camp that we’ve attended all together with other Type 1 families. We were ready for an adventure!

We skipped their half day of school on Friday and made our way leisurely through Seattle (“look, Mom, the Space Needle!”), playing a little along the way, and then headed North to the retreat center. After we checked in, met the camp directors, and found our cabin (double bunk beds!) we gathered in the meeting room with the other families for orientation. Then off to bed for a good night’s rest.

The morning started off with a bang, with a keynote presentation by a family psychologist that had me tearing up in my seat. The topic was parenting and diabetes and he touched on standard issues like discipline and family dynamics, but also addressed more tender topics like grief and loss. He asked us to reflect on our diagnosis stories and my chest tightened. We have two of those; they are different, but equally painful. Being in a room full of other parents who I knew shared similar stories and experiences made it a little easier to confront those memories and emotions.

Photo Credit: Kristine Burtner. Everyone gathers together in the center of the meeting hall to get to know one another.

Photo Credit: Kristine Burtner. Three teens with type 1 diabetes share their stories and answer questions

Photo Credit: Kristine Burtner. Parents and caregivers listen together to the presentations.

Other sessions that day included a research update, a panel to discuss diabetes in the school environment, and a small group session in which we all shared tips and for living and coping with diabetes in our families. This hour or so of more intimate and open discussion was my favorite part of the weekend. Groups included caregivers with newly diagnosed kids, some who have weathered years and years of diabetes in their families, and everything in between. My group even included another set of parents that had two kids with diabetes.

Even though I’ve been parenting diabetic kids for four years now, I was a sponge, soaking up information and experience like I was a newbie. It was so comforting to be surrounded by other parents who Understand—other adults who have to navigate school policies and holiday parties, wake up multiple times during the night to check blood sugars, and learn to live with a complicated disease that has unpredictable and ever-changing effects on their kids and families. We could all look at each other, recognize that underlying burden of physical and emotional fatigue we wear like an old sweater, and say “I get it.”

I hope that my kids had similar feelings of solidarity. Evie and Luke go through most of their daily lives being the only kids with diabetes, singled-out by blood sugar checks, trips to the health room, and well-intentioned but isolating comments from teachers (“Please avoid sending sugary treats because we have a Diabetic in our class…”).

I expect that it’s a relief to be in the company of other kids who have to stop and pull out a medical device before tearing into that mid-morning granola bar and bag of pretzels. And whatever your age, its fun to swap “war stories.”

This one time I had a vampire cannula and my tubing totally filled up with blood!! 

Don’t you hate it when your mom pushes too hard on the lancet and your finger is still bleeding three hours later??

One morning my school served french toast sticks that had 300 carbs per serving and I had to do TWO injections just to cover!! (Er….WHAT??)

Evie offers moral support to friends about to have a blood test.

Siblings of kids with diabetes also need peer support, and I was happy to see Will interacting and making new friends. I doubt, at eight years old, that he engaged in any conversations specifically about his feelings and experiences being a middle child sandwiched in between two kids with major medical issues, but he certainly saw that he wasn’t alone, and that was the whole point of camp. So that none of us would feel alone in our circumstances.

Photo Credit: Kristine Burtner. Evie plays carpet ball with a fellow camper.

I hope to go again next year and see many of the same families I met. Evie collected some e-mail addresses and is already busy keeping in touch. And Will asks me nearly daily if I’ve heard from his new friend’s mom yet.

But the most important take away for me was the realization that support and connection with other people who live with diabetes is vital. Not only to share information and resources, but to have people that can laugh with you when you make jokes about infusion sets and low blood sugars, panic together at the empty coffee pot, and not bat an eye when you cry over breakfast conversation. People who “get it.”

See you next year!

Evie is enjoying keeping in touch via e-mail with her new friends from camp.

Family Camp – ConnecT1D

The Majors are going to Camp!

I happened upon a post a few weeks ago from a Seattle-area group called ConnecT1D for an upcoming Diabetes Family Camp the organization will be hosting next month. It sounded like so much fun! A weekend of family togetherness, campfires, mess hall dining and canoeing….all while connecting with other T1D families, and even learning some new things about living with Type 1:

ConnecT1D is founded on the simple principle that people with diabetes manage their disease better when they have connections to and support from others with diabetes. To live our mission to connect people with diabetes to each other and to disease management resources, ConnecT1D will host our first annual Family Camp, October 12-14th, 2012!

Our home for the weekend is Warm Beach Camp, about 50 miles north of Seattle. Families with children of all ages are welcome. The weekend’s agenda is packed full of presenters and breakout sessions covering a variety of key topics including: managing the emotional impact of diabetes, diabetes in your school, advanced pump and CGM use, and many more. The breakout sessions facilitate the sharing of tips, frustrations and encouragement.

While parents gain and share valuable insights into raising a family impacted by Type 1 Diabetes, the kids’ agenda is simple: FUN and FRIENDSHIP. Children (ages 0-12) will be paired up with energetic volunteers who are knowledgeable about Type 1 Diabetes. The kids programming and the Warm Beach facilities offer a wide-variety of age-appropriate activities to help kids meet other kids, just like them, who deal with diabetes every day. Teens ages 13 and up are eligible for junior camp counselor and camp counselor positions.

via Family Camp – ConnecT1D.

I filled out the scholarship application that night, but I waited to mention it to Evie, Will, and Luke until I knew if we were going to be able to go. A few days ago I received a phone call from a Camp Director with news that one of their generous donors will be sponsoring us for the weekend. I am absolutely thrilled, and grateful. And the kids’ eyes lit up when I told them all about it.

Let the Countdown To Camp begin….